What I noticed about today is that I have a wonderful support group. I have friends that are willing to go out of their way to help me if only to make my day a little easier or brighter. My husband has been nothing but supportive, compassionate, and loving since this has all started and I know without him I would be a hot mess. My parents are always there to listen to me and to reassure me that things are going to be okay. In my bouts of self pity and helplessness I would call my Mom crying hysterically and it was amazing how she always knew exactly what to say to calm me down and make me feel better. I have realized today that when people see you fighting to persevere they want to help you. I am truly grateful for the people that have been helping me.
-My doctors, both traditional and western
-The pharmacists whom by now I know VERY well. They are always so compassionate when I see them.
- My instructors and bosses who have been understanding and gentle towards me
- My family and friends who have been nothing but loving, understanding and always willing to help in any way that they can.
- My Mother-in-law who has been trying to find ways to get me healed even if it means just sending my husband home with creams and a book on natural healing.
Through this day I felt that things were going to get better even though I was still in pain, and my body was telling me otherwise, my spirit is what kept me strong and positive. And wouldn't you know it just when I was about to go home and relax, I got a phone call from Dr.Yu's office saying that he wanted to see me today at 4pm. Being the wonderful man that he is, my husband raced home to take me straight to see the Doc.
The second biopsy report came back, there is no sign of infection or any type of harmful bacteria. I tested negative for any signs of infection. What I did get diagnosed with today is something called "Sweets disease" or "Sweets syndrome." As odd as it may sound, when Dr. Yu announced his prognosis it actually made me smile. "Sweets disease"
I like the sound of that. Apparently it is a very rare skin disease, it can happen when an infection enters the body or it can be because of an underlining chronic illness which would require further investigation. I'm betting that with my case it was because of the staph infection that the first doctor diagnosed me with.
I am happy to say that I no longer have to take antibiotic pills, though, the doc did increase my steroid pills. I'm still taking 16 pills a day, plus the mouthwash, plus the antibiotic cream, and also calcium and vitamin D supplements because the steroids can make my bones weaker. Having said all that, I actually feel content right now. I feel safe because I know and I trust that things are going to be okay for me. I accept that what I am going through is a struggle and I'm okay with that. There are many things that I have in my life that out weigh the pain and discomfort. I choose to focus my energy and perception on what is good in my life rather than what is going to bring me down.
This has been the on going medications that I have taken since the beginning of August.
This is just some of what "sweet disease" looks like. I know it's not the prettiest thing to look at, but its the reality of the situation.
I do have to say that I miss my nose. It may sound petty but I like my nose and I really like my skin. I will be happy when this all goes away, if I was to say that I am enjoying this, I would not only be a liar but a demented liar. I am however, taking the opportunity to make the best out of the situation. And you know what they say about life and lemons...
Though I think Winston Churchill said it best. He said, "If you are going through hell, keep going.”
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